A Beginner’s Guide to Short Bowel Syndrome

Created for parents, by parents.

No parent expects the news. So when you receive the news of a Short Bowel Syndrome diagnosis, it’s only fair that it’s a little overwhelming. Your picture of what the future of your family looks like begins to shift, and you have to shift with it.

Let’s start off by saying, you’re not alone. There are parents, caregivers and family members who have faced the same shifting image. All of whom have knowledge and experiences that can help you visualize a new future with Short Bowel Syndrome in your life.

This is a beginner’s guide to Short Bowel Syndrome created by parents who have been where you are.