Alexio - Model RARE ANSWERS Brochure

People with rare diseases often wait years to receive a proper diagnosis and many never receive one at all. RARE ANSWERS™ is a system of innovative and sustainable tools designed to help shorten the diagnostic journey and time to initiating treatment of children with a rare disease.  Developed in collaboration with leading children’s hospitals and technology and data-science companies, RARE ANSWERS tools are designed to deliver actionable data to physicians by analyzing phenotypic and genomic data and incorporating precision software, medical information, and clinical insights. Pilots of this approach have achieved world records in reducing the time to diagnosis and treatment for children in NICUs. Alexion has acted as steward of this program for five years, investing as part of our commitment to the needs of all people with rare diseases.